Study protocol
Paramasivam, A., Jaiswal, A., Minhas, R., Holzhey, P., Keyes, K., Lopez, R., & Wittich, W. (2021). The development of the International Classification of Functioning, Disability and Health Core Sets for deafblindness: A study protocol. Plos one, 16(12), e0261413.
Phase 1: Systematic review paper 1
Paramasivam, A., Jaiswal, A., Budhiraja, S., Holzhey, P., Santhakumaran, P., Ogedengbe, T., … & WITTICH, W. (2023). The International Classification of Functioning, Disability and Health Core Set for deafblindness: Part I: a systematic review of outcome measures. European journal of physical and rehabilitation medicine, 59(5), 615, DOI: 10.23736/S1973-9087.23.07890-5
Phase 1: Systematic review paper 2
Jaiswal, A., et al, (2024, submitted, under review). The International Classification of Functioning, Disability and Health (ICF) core sets for deafblindness, Part II of the Systematic review: Linking data to the ICF categories.European journal of physical and rehabilitation medicine.
Phase 2 – Qualitative survey
Wittich, W., et al, (2024, submitted, under review). Development of Core Sets for deafblindness using the International Classification of Functioning, Disability, and Health: The perspectives of individuals with lived experience. European journal of physical and rehabilitation medicine.
Phase 3 – Experts’ study
Wittich, W., et al, (2024, in press). Development of core sets for deafblindness: an international expert survey on functioning and disability of individuals living with deafblindness using the International Classification of Functioning, Disability, and Health. European journal of physical and rehabilitation medicine.
Phase 4: Multi-site Study:
Aminparvin, H., Jaiswal, A., Ogedengbe, T.O.,*Dumassais, S., Lopez, R., Prain, M. & Wittich, W. (in press October 24th 2025). Assessing Cognition, Mental Health and Daily Functioning in Deafblindness: An Empirical Multi-centre Study for ICF Core Set Development, British Journal of Visual Impairment, https://doi.org/10.1177/02646196251382503
Ogedengbe, T.O., Jaiswal, A., Dumassais, S., Lopez, R., Prain, M. & Wittich, W. (2025). Development of Core Sets for Deafblindness using the International Classification of Functioning, Disability and Health: An empirical multi-center study, Otorhinolaryngology, 75(1), 1-10 DOI: 10.23736/S2724-6302.25.02557-5
Comparison Study
Wittich, W., Dumassais, S., Li, X., Saini, M. & Granberg, S. (2026). Comparing perspectives from experts and individuals with lived experience in the Global North versus the Global South: ICF Cores Sets for deafblindness, Population Health Metrics,24, Article #11, https://doi.org/10.1186/s12963-026-00453-w
Next steps: ICF Core Set for children and youth with deafblindness
Dumassais S, Wittich W. Development of the International Classification of Functioning, Disability and Health Core Sets for children and youth with deafblindness: protocol for a multistudy collaboration across regions of WHOBMJ Open 2025;15:e100155. doi: 10.1136/bmjopen-2025-100155
The WHO ICF Core Sets for Deafblindness: An Overview of the Development Process
Wittich., W. & Dumassais, S. (in press February 21st 2025). The WHO ICF Core Sets for Deafblindness: An Overview of the Development Process, British Journal of Visual Impairment https://doi.org/10.1177/02646196251320351
Wittich, W., Dumassais, S., Jaiswal, A., Ogedengbe, T. O., Lopez, R., & Granberg, S. (2025a). The WHO ICF Core Set for Deafblindness: The brief core set. . https://doi.org/10.17605/OSF.IO/NK29J
Wittich, W., Dumassais, S., Jaiswal, A., Ogedengbe, T. O., Lopez, R., & Granberg, S. (2025b). The WHO ICF Core Set for Deafblindness: The comprehensive core set. Open Science Framework. https://doi.org/https://doi.org/10.17605/OSF.IO/A942K
Wittich, W., Dumassais, S., Jaiswal, A., Ogedengbe, T. O., Lopez, R., & Granberg, S. (2025c). The WHO ICF Core Set for Deafblindness: The intermediate core set. https://doi.org/10.17605/OSF.IO/627PF